Full legal name: NATCIONALNAYA ASSOTCIATCIYA ORGANIZATCIJ BOLNIH REDKIMI ZABOLEVANIYAMI "GENETIKA"
Leader: Karimova Svetlana Igorevna
Date of entry in the register: 21.04.2008
Number of founders: 2
Legal address: RUSSIA, 191144, G.ST.PETERSBURG, MUNITCIPALNIJ OKRUG SMOLNINSKOE, UL MITNINSKAYA, D. 12/44,LITERA A, LITERA A, POMESH. 13N: CHAST POM. 26, OFIS 5 
E-mail:
Site (www):
Telephone(s): +7(812)446-22-41
TIN (INN): 7842013677
KPP (tax registration reason code): 784201001
OKPO (All-Russian Classifier of Enterprises and Organizations): 85562024
OGRN (Primary state registration number): 1087800002553
OKFS (National Classification of ownership): 49 - Mixed russian ownership
OKOGU (National Classification of state power and control): 4210014 - Organizations established by legal entities or citizens or legal entities and citizens together
OKOPF (National Classification of legal forms): 20600 - Association of legal entities
OKTMO (National Classification of municipalities): 40911000000
Main (NACE): 85.32 - Health and social services, Health care and social services, Social services, Social work activities without accommodation
Additional:
| 22.11 | Book publishing |
| 22.13 | Publishing of journals and periodicals |
| 92.11 | Film Production |
| 72.30 | Processing |
| 73.20 | Research and experimental development on social sciences and humanities |
| 85.32 | Social work activities without accommodation |
| Name | Share | Amount |
| company with OKPO 79741047 | 0% | 0 ths rub. |
| company with OKPO 73344888 | 0% | 0 ths rub. |
| Date | Name | Share | Amount |
| 21.07.2016 | OBSHENATCIONALNIJ SOYUZ NEKOMMERCHESKIH ORGANIZATCIJ I SOTCIALNIH PREDPRIYATIJ | 0% | 0 ths rub. |
| 13.02.2012 | NBF "REDKIE" | 0% | 0 ths rub. |
| 25.11.2009 | ANO "Informatcionnij tcentr po redkim zabolevaniyam" | 0% | 0 ths rub. |
| Financial statements (accounting figures): | |||
| Code | Indicator | Value | Unit |
| F1.1100 | Total for Section I - Non-current assets | 0 | ths rub. |
| F1.1200 | Total for Section II - Current assets | 0 | ths rub. |
| F1.1600 | BALANCE (asset) | 4906 | ths rub. |
| F1.1300 | Total for Section III - Own capital | 4494 | ths rub. |
| F1.1400 | Total for Section IV - Long-term liabilities | 0 | ths rub. |
| F1.1500 | Total for Section V - Short-term liabilities | 0 | ths rub. |
| F1.1700 | BALANCE (passive) | 4906 | ths rub. |
| F2.2100 | Gross profit (loss) | 0 | ths rub. |
| F2.2200 | Profit (loss) from sales | 0 | ths rub. |
| F2.2300 | Profit (loss) before tax | 0 | ths rub. |
| F2.2400 | Net income (loss) | -3887 | ths rub. |
| F2.2500 | The total financial result of the period | 0 | ths rub. |